Round 3

Round 3 of chemo was a freaking beast. They prepped us pretty well. We were told multiple times that round 3 on his treatment plan is very rough on kids. The first couple days of treatment I thought maybe we were the lucky ones and we broke the norm. About day three of this round is when it all started. His appetite was zero and he would throw up from time to time. He still had some energy to move around and play. That didn't drop until when we got home.



During a round of chemo. Beckham is funny and likes his bed put up on both sides. He is like a little taco. Brian told me that he tried to put up just one side of the bed and make a big slide. It's crazy how high the beds can raise up. Haha. He definitely makes the nurses and doctors nervous with how active he is.


Playing Star Wars Operation.



Sorry if this picture is a little much. It's really sad for me to see this picture. He wants these pink buckets by his side all the time now.


Leaving the hospital! You can tell he is just exhausted. He is so over it and I do not blame him one bit.



Before we left we got a visit from Miss Bella and my friend Tiffany. It's so cute watching these two play. He ran up to her and they gave each other a little hug. His energy definitely perked up seeing her. They snacked on some Lucky Charms and Beckham was picking out the marshmallows and giving them to Bella. I think he may have a crush. :)



A family friend sent this cape to Beckham. I have to admit I was a little confused when I saw the "R" on the back. After reading the card that went along with the cape it stated that the "R" stands for RECNAC. It is cancer spelled backwards. They explained that in their home, when their mother had cancer, they found it less scary and almost funny to use the work "RECNAC" instead. Beckham had wearing the cape around the house.


My sweet little boy. This picture breaks my heart. He looks like he is sleeping, but he is just laying there on the couch. Besides that first day home...he has been laying around. We have to carry him from
his bed to the couch. He doesn't want to move and you have to help him sit up. He has medicine to help with the nausea and pain but he has a hard time keeping anything in. We give him IV fluids at night to help him stay hydrated. I have been doing a lot of research on oils and such...I am hoping they are helping him some!!!!






The two pictures above are Beckham back up at clinic. Last Friday Beckham was still not eating and just seemed miserable. So, I had Brian take him up to Children's to have them look him over. They just sent us home more medicine to increase his appetite. I was a little frustrated with this since he has a really hard time taking meds right now. He has started to nibble a little more though and I'm really hoping that picks up so he does not have to get a feeding tube.

Tests...Surgery...Chemo

Before his hearing test!


One of his heroes! The one any only Spider-Man!!!


Waiting for his MRI


Sedated and ready to start!


Admitted and waiting for chemo to start up.


So, here we are ready to start round 3 of chemo. We are close to the two month mark of diagnosis. It's crazy to me how what is "normal" has changed so much since then. This week Beckham has had a hearing test, a MRI, MIBG scan and a bone marrow biopsy and aspirate. I am amazed that he is not going crazy. It has been a busy last few days.
So, you are probably wondering how his tests went! His hearing test was amazing. They told us he test above average. This made me so happy since the chemo he gets can damage his hearing. His scans went good as well. The amount of cancer in his body is less. This makes me very happy, but I am still one concerned mother.
I had many questions for his doctors this morning. Maybe I am weird, but I like to know what I am up against. I don't care if it is not what I want to hear. I want to know so I can mentally prepare myself.
Beckham has quite the road ahead of him. Neuroblastoma is a very aggressive cancer and the treatment he is getting is pretty intense. The odds are not totally in Beckham's favor and this terrifies me. If Beckham beats this monster, he is pretty much guaranteed to have some significant health issues. Ugh...more on that later.

Beckham is strong though! He is definitively a fighter!

Location:N Mario Capecchi Dr,Salt Lake City,United States

Bloggers Give Back

KSL

Today we were able to meet with KSL news to talk about the Bloggers Give Back Event going on this weekend. If you would like more info please look up www.bloggersgivebackevent.com and watch this clip. :)

http://www.ksl.com/?sid=27542256&nid=1194

Halloween

Halloween was a ton of fun for Beckham this year. I initially thought we were not going to be able to take him out since his counts were so low. Blood tests said he was severely neutropenic. I asked for ideas of what I could do for my little boy and I have to say that I was so overwhelmed with all of the ideas. Thank you all for the help. I am very grateful for such good family and friends.


Beckham had a blood test Halloween day and surprisingly his counts jumped up to normal levels! Here he is with two of his cousins. Love these little super heroes.


Mr. Ironman trick or treating.


Beckham was so concerned with my "yips!" Haha. "What happened? You bleeding?"


Navy and Beckham playing at the family Halloween party.

Any ideas?

It looks like this little super hero of mine is going to have to stay in for Halloween this year. He is severely neutropenic still, as of Monday. :( His counts are expected to rise each day, but I don't think they will be at a level where they are high enough to be out and about. (I could be wrong though!) Here is my question though....any fun Halloween ideas...activities, shows, crafts, games, etc. I want to make it a fun day for him. Any suggestions are welcome!!!

Thank you!!!

Round 2

Round 2 of chemo went really really well. His appetite didn't go down much and he drank plenty of fluids!!!! It's funny how much wet diapers and eating pb&j sandwiches are so exciting. (Yes, he is still in diapers for now. We were potty training when we found out about Beckham's diagnosis.)
Beckham has had tons of energy through this treatment as well. They want you to try and get your child out of bed at least 3 times a day while at the hospital and I think we was out of his bed the majority of the time.
Beckham does still have a limp. :( He has pain in his right leg when he walks and his joints are very tender. It's very hard to see him walk around. He manages well though and being the tough guy he is always tells me, "I'm good mommy." They tell us it could be a number of things...chemo...cancer or the medications he's taking.



FaceTime with his sister!





Arts and crafts!



Chemo....


Train whistle surprise while watching Thomas...thanks Krystal!!!!


Navy visiting...the pop machine stopped her in her tracks though. She could understand why it wasn't giving her juice.


Oh...how I wish I could of gotten this recorded. The doctors were in checking him over and discussing treatments. He wasn't the happiest with them being there. After they left he got a very serious look on his face and starting punching his fist into his hand. It made me laugh out loud and he just turned and smiled at me. (Where does he learn this stuff?)


Leaving the hospital!!! Round 2....check!!!


Feeling well enough to play in a special play corner they have for the kids. :)





Helping Dad paint!!!


He is my little climber!!!

"Look mom...take a picture of me! I'm a monkey!!! Eeee! Eeee!"